Constructing a Bioethical Framework to Evaluate and Optimise Newborn Bloodspot Screening for Cystic Fibrosis

Abstract

by Rachael E. Armstrong,Lucy Frith,Fiona M. Ulph andKevin W. Southern
Int. J. Neonatal Screen. 2020, 6(2), 40; https://doi.org/10.3390/ijns6020040 - 26 JAN 2022
Cited by 5 | Viewed by 3243
Abstract
Newborn bloodspot screening for cystic fibrosis is a valid public health strategy for populations with a high incidence of this inherited condition. There are a wide variety of approaches to screening and in this paper, we propose that a bioethical framework is required to determine the most appropriate screening protocol for a population. This framework depends on the detailed evaluation of the ethical consequences of all screening outcomes and placing these in the context of the genetic profile of the population screened, the geography of the region and the healthcare resources available. Full article
(This article belongs to the Special Issue Newborn Screening for Cystic Fibrosis)